The organization supports undiagnosed pediatric patients and with ultra-rare diseases. Among other activities, it provides social and legal counseling, supports pediatric patients and their families, and works to raise awareness about undiagnosed children patients and about ultra-rare diseases.
The memorandum creates a platform for strengthening mutual cooperation and advancing precision medicine in the above-mentioned areas. At the same time, it establishes a framework for joint activities aimed at improving the understanding of the needs of these patients, sharing experience, and increasing awareness of this topic. The cooperation will also include the organization of meetings and educational activities as well as the development of informational materials for patients, their families, and the general public.